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ALS (amyotrophic lateral sclerosis)

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Specialized doctors worldwide

Who is leading ALS (amyotrophic lateral sclerosis) research? Everyone here comes from a public registry: as principal investigator of a study at ClinicalTrials.gov, or as last author of publications in PubMed. Those are two different things, so we list them in two columns side by side instead of combining them into one figure.

This is not a referral and not a judgment on care. We know nothing about how these people treat, whether they accept patients, or how to reach them. We do not display contact details. If you want a second opinion or a referral, go through your own specialist.

Leads the most studies

Registered as principal investigator at ClinicalTrials.gov. Setting up and running a study is years of work.

  1. 1 Merit E. Cudkowicz Massachusetts General Hospital, United States leads 22 studies register →
  2. 2 Jeremy M Shefner Barrow Neurological Institute, United States leads 13 studies · 3 publications as last author register →
  3. 3 Dongsheng Fan Peking University Third Hospital, China leads 9 studies · 22 publications as last author register →
  4. 4 Björn E. Oskarsson UC Davis, United States leads 8 studies register →
  5. 5 Sabrina Paganoni Massachusetts General Hospital, United States leads 7 studies · 11 publications as last author register →
  6. 6 James D. Berry Massachusetts General Hospital, United States leads 7 studies · 10 publications as last author register →
  7. 7 Richard S Bedlack Duke Health, United States leads 7 studies · 6 publications as last author register →
  8. 8 Michael G Benatar University of Miami, United States leads 7 studies · 5 publications as last author register →
  9. 9 Robert G. Miller California Pacific Medical Center, United States leads 7 studies register →
  10. 10 Dominic Rowe Macquarie University, Australia leads 6 studies register →

Also leading

  1. 11 Terry D Heiman-Patterson Drexel University College of Medicine, United States leads 6 studies register →
  2. 12 Suma Babu Massachusetts General Hospital, United States leads 5 studies · 5 publications as last author register →
  3. 13 Seung Hyun Kim Hanyang University Seoul Hospital, South Korea leads 5 studies · 3 publications as last author register →
  4. 14 Anthony J. Windebank Mayo Clinic, United States leads 5 studies register →
  5. 15 Benjamin R Brooks Neurosciences Institute, Neurology - Charlotte, United States leads 5 studies register →
  6. 16 Emily K Plowman University of Florida, United States leads 5 studies register →
  7. 17 Leonard H Van den Berg UMC Utrecht, Netherlands leads 5 studies register →
  8. 18 Thomas Meyer Charité University Hospital, Berlin, Germany leads 4 studies · 6 publications as last author register →
  9. 19 Albert C. Ludolph Department of Neurology, University of Ulm, Germany leads 4 studies · 3 publications as last author register →
  10. 20 Hamid Gourabi Head of Royan Institute, Iran leads 4 studies register →
  11. 21 Jakub M Antczak Jagiellonian University, Poland leads 4 studies register →
  12. 22 Jane Huggins University of Michigan, United States leads 4 studies register →
  13. 23 Lucette Lacomblez Assistance Publique - Hôpitaux de Paris, France leads 4 studies register →
  14. 24 Noam Y. Harel James J. Peters Veterans Affairs Medical Center, United States leads 4 studies register →
  15. 25 Sanjay Kalra University of Alberta, Canada leads 4 studies register →

Publishes most about this disease

Counted as last author on publications from the last five years — in medicine the leader of the research group. This also includes physicians who do not register studies but do advance the field.

  1. 1 Mamede de Carvalho Department of Neurology- Hospital de Santa Maria, Portugal leads 1 study · 24 publications as last author register →
  2. 2 Dongsheng Fan Peking University Third Hospital, China leads 9 studies · 22 publications as last author register →
  3. 3 Adriano Chiò University of Turin, Italy 15 publications as last author PubMed →
  4. 4 Steve Vucic Concord Clinical School, Australia 13 publications as last author PubMed →
  5. 5 Sabrina Paganoni Massachusetts General Hospital, United States leads 7 studies · 11 publications as last author register →
  6. 6 Hideyuki Okano Keio University Regenerative Medicine Research Center (KRM), Japan 11 publications as last author PubMed →
  7. 7 Martin R Turner Nuffield Department of Clinical Neurosciences, United Kingdom 11 publications as last author PubMed →
  8. 8 Andreas Hermann University Medical Center Rostock, Germany 11 publications as last author PubMed →
  9. 9 James D. Berry Massachusetts General Hospital, United States leads 7 studies · 10 publications as last author register →
  10. 10 Huifang Shang National Clinical Research Center for Geriatrics, China 10 publications as last author PubMed →

Also leading

  1. 11 Peter Bede School of Medicine, Ireland 10 publications as last author PubMed →
  2. 12 Jessica Mandrioli Azienda Ospedaliero-Universitaria di Modena, Italy leads 2 studies · 9 publications as last author register →
  3. 13 Matthew C Kiernan Neuroscience Research Australia 9 publications as last author PubMed →
  4. 14 Yuishin Izumi Tokushima University Graduate School of Biomedical Sciences, Japan 9 publications as last author PubMed →
  5. 15 Orla Hardiman School of Medicine, Ireland 9 publications as last author PubMed →
  6. 16 Stephen A Goutman University of Michigan, United States 9 publications as last author PubMed →
  7. 17 Aaron D Gitler Stanford University School of Medicine, United States 9 publications as last author PubMed →
  8. 18 Honglin Feng The First Affiliated Hospital of Harbin Medical University, China 9 publications as last author PubMed →
  9. 19 Nicola Ticozzi IRCCS Istituto Auxologico Italiano, Italy 9 publications as last author PubMed →
  10. 20 Stephen Apple Tanabe Pharma America, United States 8 publications as last author PubMed →
  11. 21 Masahisa Katsuno Nagoya University Graduate School of Medicine, Japan 8 publications as last author PubMed →
  12. 22 R Jeroen Pasterkamp University Medical Center Utrecht, Netherlands 8 publications as last author PubMed →
  13. 23 Raffaele Dubbioso University of Naples Federico II, Italy 8 publications as last author PubMed →
  14. 24 Liying Cui Peking Union Medical College Hospital, China 8 publications as last author PubMed →
  15. 25 Jiou Wang Johns Hopkins University, United States 8 publications as last author PubMed →

Counted from ClinicalTrials.gov and PubMed, updated on 2026-08-10. Is something incorrect, or would you prefer not to be listed? Let us know — we'll adjust it.

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