Alpha-1 antitrypsin deficiency
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EU designated: ERN-LUNG
For alpha-1 antitrypsin deficiency, there is a European Reference Network for rare lung diseases. These are hospitals that have been assessed at a European level designated as an expertise centre — a recognition, not a count by us.
If you want to go to such a center, it goes through a referral from your own specialist. We do not arrange that and cannot have a say in it.
Centres of Expertise Worldwide
For alpha-1 antitrypsin deficiency we have 60 centers in view in 12 countries, of which 41 currently recruiting participants.
Which hospitals these are is part of Premium. You can then see per centre how many studies on alpha-1 antitrypsin deficiency are running or have run, in which city and which country it is located, and whether participants are currently being recruited — with a link to the official register.
Everything known about alpha-1 antitrypsin deficiency — the explanation, the symptoms, the treatment methods and all publications and studies — remains free to read. This overview is not a referral and not a judgment on care; always discuss a referral with your own specialist.
codex.care does not provide medical advice. Always discuss symptoms, medication, and treatment choices with your own healthcare provider.