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Primary lateral sclerosis

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Specialized doctors worldwide

Who conducts research into primary lateral sclerosis? Everyone here comes from a public registry: as principal investigator of a study at ClinicalTrials.gov, or as last author of publications in PubMed. These are two different things, so we list them in two separate lists side by side instead of combining them into one number.

Where these doctors work
Click or hover over a dot to see who works there. 24 of the 74 doctors are on the map — we only place those who work at an institute whose city we know, and do not guess the rest.

This is not a referral and not a judgment on care. We know nothing about how these people treat, whether they accept patients, or how to reach them. We do not display contact details. If you want a second opinion or a referral, go through your own specialist.

Leads the most studies

Registered as principal investigator at ClinicalTrials.gov. Setting up and running a study is years of work.

  1. 1 Merit E. Cudkowicz Massachusetts General Hospital, United States leads 22 studies register →
  2. 2 Jeremy M Shefner Barrow Neurological Institute, United States leads 13 studies · 3 publications as last author register →
  3. 3 Dongsheng Fan Peking University Third Hospital, China leads 9 studies · 12 publications as last author register →
  4. 4 Björn E. Oskarsson UC Davis, United States leads 8 studies register →
  5. 5 Sabrina Paganoni Massachusetts General Hospital, United States leads 7 studies · 10 publications as last author register →
  6. 6 James D. Berry Massachusetts General Hospital, United States leads 7 studies · 10 publications as last author register →
  7. 7 Richard S Bedlack Duke Health, United States leads 7 studies · 5 publications as last author register →
  8. 8 Michael G Benatar University of Miami, United States leads 7 studies · 4 publications as last author register →
  9. 9 Robert G. Miller California Pacific Medical Center, United States leads 7 studies register →
  10. 10 Dominic Rowe Macquarie University, Australia leads 6 studies register →

Also leading

  1. 11 Terry D Heiman-Patterson Drexel University College of Medicine, United States leads 6 studies register →
  2. 12 Anthony J. Windebank Mayo Clinic, United States leads 5 studies register →
  3. 13 Benjamin R Brooks Neurosciences Institute, Neurology - Charlotte, United States leads 5 studies register →
  4. 14 Emily K Plowman University of Florida, United States leads 5 studies register →
  5. 15 Leonard H Van den Berg UMC Utrecht, Netherlands leads 5 studies register →
  6. 16 Mary Kay Floeter National Institute of Neurological Disorders and Stroke (NINDS) leads 5 studies register →
  7. 17 Seung Hyun Kim Hanyang University Seoul Hospital, South Korea leads 5 studies register →
  8. 18 Suma Babu Massachusetts General Hospital, United States leads 5 studies register →
  9. 19 Thomas Meyer Charité University Hospital, Berlin, Germany leads 4 studies · 6 publications as last author register →
  10. 20 Albert C. Ludolph Department of Neurology, University of Ulm, Germany leads 4 studies · 3 publications as last author register →
  11. 21 Hamid Gourabi Head of Royan Institute, Iran leads 4 studies register →
  12. 22 Jakub M Antczak Jagiellonian University, Poland leads 4 studies register →
  13. 23 Jane Huggins University of Michigan, United States leads 4 studies register →
  14. 24 Lucette Lacomblez Assistance Publique - Hôpitaux de Paris, France leads 4 studies register →
  15. 25 Noam Y. Harel James J. Peters Veterans Affairs Medical Center, United States leads 4 studies register →

Publishes most about this disease

Counted as last author on publications from the last five years — in medicine the leader of the research group. This also includes physicians who do not register studies but do advance the field.

  1. 1 Mamede de Carvalho Department of Neurology- Hospital de Santa Maria, Portugal leads 1 study · 15 publications as last author register →
  2. 2 Eugenio Mercuri Università Cattolica del Sacro Cuore, Italy 14 publications as last author PubMed →
  3. 3 Adriano Chiò University of Turin, Italy 13 publications as last author PubMed →
  4. 4 Dongsheng Fan Peking University Third Hospital, China leads 9 studies · 12 publications as last author register →
  5. 5 Peter Bede School of Medicine, Ireland 12 publications as last author PubMed →
  6. 6 Steve Vucic Concord Clinical School, Australia 12 publications as last author PubMed →
  7. 7 Shanshan Mao Children's Hospital, China 11 publications as last author PubMed →
  8. 8 Sabrina Paganoni Massachusetts General Hospital, United States leads 7 studies · 10 publications as last author register →
  9. 9 James D. Berry Massachusetts General Hospital, United States leads 7 studies · 10 publications as last author register →
  10. 10 Huifang Shang National Clinical Research Center for Geriatrics, China 10 publications as last author PubMed →

Also leading

  1. 11 Stephen A Goutman University of Michigan, United States 9 publications as last author PubMed →
  2. 12 Stephen Apple Tanabe Pharma America, United States 8 publications as last author PubMed →
  3. 13 Toshifumi Yokota University of Alberta, Canada 8 publications as last author PubMed →
  4. 14 Liying Cui Peking Union Medical College Hospital, China 8 publications as last author PubMed →
  5. 15 Masahisa Katsuno Nagoya University Graduate School of Medicine, Japan 8 publications as last author PubMed →
  6. 16 Thomas H Gillingwater University of Edinburgh, United Kingdom 8 publications as last author PubMed →
  7. 17 Andreas Hermann University Medical Center Rostock, Germany 8 publications as last author PubMed →
  8. 18 Honglin Feng The First Affiliated Hospital of Harbin Medical University, China 8 publications as last author PubMed →
  9. 19 Jessica Mandrioli Azienda Ospedaliero-Universitaria di Modena, Italy leads 2 studies · 7 publications as last author register →
  10. 20 Ruben P A van Eijk University Medical Center Utrecht, Netherlands 7 publications as last author PubMed →
  11. 21 Yuishin Izumi Tokushima University Graduate School of Biomedical Sciences, Japan 7 publications as last author PubMed →
  12. 22 Yong-Ping Chen West China Hospital 7 publications as last author PubMed →
  13. 23 Pamela J Shaw Sheffield Institute for Translational Neuroscience, United Kingdom 7 publications as last author PubMed →
  14. 24 Susanne Petri Department of Neurology, Germany 7 publications as last author PubMed →
  15. 25 Martin R Turner Nuffield Department of Clinical Neurosciences, United Kingdom 7 publications as last author PubMed →

Counted from ClinicalTrials.gov and PubMed, updated on 2026-08-10. Is something incorrect, or would you prefer not to be listed? Let us know — we'll adjust it.

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